I'm tired of the waiting game. Three weeks ago I had a PET scan. On that PET scan it was determined that after only three months I had another recurrence.
One week I was on vacation, the next week I met my gynecologist oncologist who differed treatment to my radiation oncologist, he was out that week. Last week I saw my radiation oncologist and we discussed a promising treatment plan. I had planning scans on Tuesday. Friday I still hadn't heard from the doctor so I called. He told me the scans determined that my new cancerous lymph node was too close to the previous radiation zone and we couldn't go with a traditional treatment plan.
He mentioned the possibility of stereotactic body radiotherapy. It's a high dose direct treatment of that spot with no margins. 5 to 10 sessions. He said he hoped to know more Monday.
I called Monday. The nurse talked to the doctor and said I'm top priority and that he is overlaying the scans again to look for the best treatment option. I asked for a timeline. She did mention that we will have another face to face before we select a treatment. I'm just ready to get started.
Here I am Tuesday night, no answers. I want answers. I have a full week which should hopefully distract me. Tomorrow is my son's sixth birthday and Friday I am going to do a patient advocacy video which I'm so excited about.
I hope to hear soon what we will do. I can't help but be scared that it's taking so long to find a viable treatment plan. However, I'm also thankful I have such a large team of specialists working on finding the best treatment option.
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