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Time for a regularly scheduled PET scan...

6/1/2015

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I'm sitting here waiting. Waiting for results again. On Tuesday, May 26th I had a PET scan. This was a regularly scheduled PET scan, we are doing them every three months right now. My March PET scan was all clear so it was expected this one would be as well.  I went through all the motions of the scan: get the radioactive injection and sit in a quiet room for a hour and half, lay in the PET scan tube for 45 minutes, get the lasiks infection, wait another 45 minutes then do a quick 20 minute scan.  I really believe you should get to listen to music during these scans. You lay there in silence, with only the buzzing of the machine, and imagine. You imagine what it will be like if you have cancer, again. You wonder if you could work through treatment to keep from going crazy. You imagine what all could go wrong. You should really have music to distract you.

I emailed my nurse to follow up Wednesday morning. At 4:15 pm I called her because I hadn't heard from her. She told me that the doctor had been scheduled to review my scans at 6:30 am on Thursday and then she could call me with results. Normally she reviews them and gives me the news if it is good. I was nervous.  I asked her if my follow up appointment I had scheduled for June 8th would be with the nurse practitioner or Dr. Callahan. She told me I'd see Dr. Callahan, this was a change. I had been scheduled to see the nurse practitioner.

When I talked to the nurse on Thursday she told me the news. There's an active lymph node which wasn't active in my March scan.  The lymph node is located behind my duodenum. Then duodenum is located in the GI tract at the bottom of the stomach/top of the small intestines.

I'm on an airplane right now heading to our first family vacation. We used the flight credit we had from the honeymoon we didn't get to take (due to being in the midst of treatment for cancer round two we had to cancel our honeymoon).  We are so excited to go to Orlando and surprise Wylee with a day at Disney, a day at Lego Land, and a special lunch at T-Rex Cafe in addition to the beach and pools.  It's time for an awesome week!

The nurse said my case was going for review early this morning (Monday, June 1st) and I should be able to talk to her soon and have an idea of our next steps.

Here I am, holding pattern. Nothing to do but sit, wait, and gear up in case I need to fight round three.

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    Author

    Erica is a 32 year old cervical cancer advocate who is out living cancer for the third time. When she isn’t advocating for cervical cancer and HPV awareness as a Cervivor Ambassador, she previously oversaw the STEM program at the school where she was an educator; she now helps coordinate the robotics program. Erica enjoys spending time with her husband and son in their Indianapolis neighborhood, as well as pursuing new and adventurous hobbies. She can most recently be found fawning over kayaks and daydreaming of returning to whitewater kayaking with First Descents, an organization for young adults impacted by cancer. 

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