I haven't done a medical update in a while, mostly because I don't really have any answers. My hospital stay a few weeks ago was due to pain. I've had pain ranging from the side of my right leg above my knee up to my lower right back, near my kidney. The pain was unmanageable at that time from home and I had to go into the hospital. I was there for a few days having tests run and managing the pain. The ultrasounds and leg MRI did not give any results. I also had my ureteral stent exchanged. I actually had my MRI immediately following my stent exchange, this will be important information: I was well medicated going into the MRI machine at St. V.
The following week I had to get additional MRI testing. The daily pain was, and still is, persisting. I was hoping that the additional MRI would give us some answers. This time my MRI would take about an hour and a half. I can safely say it was the worst test experience I've ever had! I got in there and had my port accessed, all is well. Then I got situated into the MRI machine. They had me move my legs apart more and then tilt my toes towards each other, then they taped my feet together so they would stay aligned. They set me up with headphones and my music of choice: Jack Johnson. Headphones in place and it was time to go.
The MRI was so loud and isolating that I can only describe it as torture. I really don't say that to be dramatic. I thought while I was in there that this is what a person would need to do to me in order to get information out of me. The would just have to put me in a running MRI machine. That is it. So, now you know the trick to gathering information from me. MRI.
When they infused the contrast dye it felt funny, but, really all contrast dye feels and tastes funny. When she got me back into the machine I started sneezing and my tongue was tingling. I squeezed the "emergency ball" and they pulled me out quickly. After about ten minutes the symptoms subsided and I was able to resume my scan. It went well through to the end.
I waited and called the nurse late the next afternoon. It was funny because everyone else was saying I hope that the "results are good" and I was over here thinking "I hope they show a problem so we know what this pain is for." Well, the scans were good. No bone mets, which was a concern. My hip and lower back don't show definitive answers for why I'm having this pain.
Tomorrow I have a CT scan to see how the clinical trial is progressing. In the mean time I really don't have any updated information or answers but I know several people wanted to know how the MRI went.
More to come as I have information.
The following week I had to get additional MRI testing. The daily pain was, and still is, persisting. I was hoping that the additional MRI would give us some answers. This time my MRI would take about an hour and a half. I can safely say it was the worst test experience I've ever had! I got in there and had my port accessed, all is well. Then I got situated into the MRI machine. They had me move my legs apart more and then tilt my toes towards each other, then they taped my feet together so they would stay aligned. They set me up with headphones and my music of choice: Jack Johnson. Headphones in place and it was time to go.
The MRI was so loud and isolating that I can only describe it as torture. I really don't say that to be dramatic. I thought while I was in there that this is what a person would need to do to me in order to get information out of me. The would just have to put me in a running MRI machine. That is it. So, now you know the trick to gathering information from me. MRI.
When they infused the contrast dye it felt funny, but, really all contrast dye feels and tastes funny. When she got me back into the machine I started sneezing and my tongue was tingling. I squeezed the "emergency ball" and they pulled me out quickly. After about ten minutes the symptoms subsided and I was able to resume my scan. It went well through to the end.
I waited and called the nurse late the next afternoon. It was funny because everyone else was saying I hope that the "results are good" and I was over here thinking "I hope they show a problem so we know what this pain is for." Well, the scans were good. No bone mets, which was a concern. My hip and lower back don't show definitive answers for why I'm having this pain.
Tomorrow I have a CT scan to see how the clinical trial is progressing. In the mean time I really don't have any updated information or answers but I know several people wanted to know how the MRI went.
More to come as I have information.
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